Harriet McBryde Johnson
1957-2008 · United States →
Harriet McBryde Johnson was an American lawyer, writer, and disability rights activist. She was one of the sharpest writers on disability in English. She was born on 8 July 1957 in Laurinburg, North Carolina. Both her parents were college teachers. She was one of five children. A sister also had the same progressive neuromuscular disease that Harriet herself lived with. The disease affected her muscles throughout her life. From an early age, she used a motorised wheelchair. She needed help with many daily tasks.
She was an activist from her teens. As a young student, she tried to get an abusive teacher fired. She later described this as the start of her 'hell-raising'. She studied history at Charleston Southern University, earned a master's degree in public administration, and then a law degree from the University of South Carolina in 1985. She lived most of her life in Charleston, South Carolina.
As a lawyer, she specialised in helping poor disabled clients claim Social Security benefits. This was quiet, unglamorous work. It kept her close to the realities of disabled lives most people ignored. She was also active in politics, serving as chair of the Charleston County Democratic Party. She described herself, with her usual humour, as 'a disabled, liberal, atheistic Democrat' and as 'a bedpan crip'.
She became nationally famous in 2003 when The New York Times Magazine published her essay 'Unspeakable Conversations'. It described her debate the year before with the Princeton philosopher Peter Singer, who argues that parents should be allowed to kill severely disabled babies. The essay was sharp, funny, and serious. It made her one of the most important voices in American disability thought. She later wrote a memoir, Too Late to Die Young (2005), and a novel for young adults, Accidents of Nature (2006). She died on 4 June 2008, aged 50.
"He insists he doesn't want to kill me. He simply thinks it would have been better, all things considered, to have given my parents the option of killing the baby I once was."